Wednesday, September 29, 2010
No Pain Smile
Tuesday, September 28, 2010
So Glad We Agree
We entered the waiting room. It was full. With mostly teens and a parent. After all, the removal of wisdom teeth is like a rite of passage in the teenage years. I caught a glimpse of a few staring at us. They eye Sarah up and down and then look at me. After twenty one years, I'm just used to it. Except today. For some reason, I just wanted to yell out, "Stop staring." I'm sure it was because I was nervous. But what was I afraid of? Truthfully, that these teeth are so close to Sarah's airway. Sarah's very damaged airway. If I let myself, I could visualize all sorts of things going wrong. Horribly wrong. Instead, I concentrated on getting all the paper work completed.
Until I turned the sheet over and got to the medical information...
- heart disease - check
- asthma - check
- thyroid issues - check
- airway issues - check
- ever experienced trouble coming out of anthesia - check
- other issues we should be aware of - subglotic stenosis - check
The fear set back in. All of a sudden I felt hot. Burning hot. Then my heart started racing. "Oh c'mon Joyce, we are just talking teeth here," I said to myself. Then they called her name. She hopped up and followed the receptionist back into the treatment room. I quickly scanned the area. My urge was to run. Run fast. The other direction. The counter was cluttered. An oxygen tank was covered with thick plastic. It had not been used in sometime. The floor was not very clean. Old manuals lined a shelf. And then...next to my chair was an IV pump...with a used line and connector still attached. I was horrified.
My nervous state turned to an adrenaline rush. But before I could develop an action plan the doctor came in. He asked Sarah some questions. He put a glove on and examined her mouth. I started to feel panic. C'mon Joyce think. What can I say? I need to get her out of here. He started to ask me a question. I did not immediately hear him. He repeated the question. "Does she take medicine well?" "No. NO. " That's it. My escape clause. "No, she refuses to take medicine orally. She needs an IV line." And then I heard sweet music to my ears, "So sorry, we will not be able to complete this procedure here in the office. She will need to be in the hospital with a full team to support her." "Oh, I could not agree more," I readily replied.
The doctor left the room. Sarah leaned over to me and said she hated the taste of the exam glove in her mouth. I wanted to tell her I hated the taste of the entire experience.
Monday, September 27, 2010
Oral Surgeon says No Way
Sunday, September 26, 2010
What Would You Do?
Then Friday came. Sarah's daily routine is this:
- 9:30 she wakes up
- 9:45 she gets herself dressed
- 10:30 we depart for the store
- 10:50 she counts the money drawer
- 11:00 she goes upstairs to John's office and he feeds her lunch
- 11:30 she comes back down to the store
- 11:45 TJ picks her up at the side door to transport her to her job training program
For some reason on Friday, she did not wake up as usual. I went in a few times and asked her if she was ok. I asked if her teeth hurt. She assured me she was fine. So off we went for the store. When it was time for lunch, TJ (John was away at a meeting - sure love having TJ working with us now) came into the store and said Sarah was laying on the futon and did not want to eat lunch. I ran upstairs to check on her and told her she could stay there for the day. She insisted on going to her job. I handed TJ an empty trash can before he left. You know, just in case.
I went back into the store with a pit in my stomach. Something was just off. Something just did not feel right. The crazy thing is, I have been feeling this way since the beginning of this school year. I continue to question why we are sending her to this program when she has a place of employment. Her very own store. You may remember my post from last spring when I found out that this program was recommending that she go to the AAC (adult activities center) upon her aging out at the end of this year. I saw that as being so limiting. I was angry. Mostly because this was the first I had heard this. Her previous teachers seemed more optimistic. But Sarah wants to walk across the stage for graduation in June. So that is the goal. Our eyes are on that prize.
TJ returned to the office and said Sarah was fine by the time he dropped her off. I felt somewhat relieved. Until a few hours later when I started calling Sarah's cell phone at the time she should be home, and she was not answering. My momma antennae was going haywire. I was just about to ask TJ to go home and check on her, when she finally answered. "Gosh mom, I was eating my snack," I heard in her disgusted voice. "I'm fine mom." "Ok Sarah, see you later. This time I really did breathe a sigh of relief. I went back to working on a sample I am making, in between customers.
When I arrived home, an envelope was waiting for me on the counter...
What would you do?Saturday, September 25, 2010
A Scan of our News Story

Thursday, September 23, 2010
I Made the Front Page!!!
Tuesday, September 21, 2010
Big Pay Out from the Tooth Fairy
My mom scanned the x-ray so you can see it better. Do you see that little backwards R. Follow that directly to the first wisdom tooth. It is going sideways into my other tooth. That is the one that is killing me. Now if you look really close you can see I only have a half a wisdom tooth on that side up top and no wisdom tooth up top on the other side. Weird.
Monday, September 20, 2010
Sweet Innocence
This has always been one of my favorite photos of Sarah and me. I have been keeping the photo album that looks back twenty years, beside my desk. I try not to look too far ahead of the date we are currently at, so as to capture the memory for that date, as it comes to me. When I turned the page this weekend and saw this photo, I felt a flood of emotions. Oh how I wish we could have frozen that day. Sarah was becoming a healthier baby. She was happy. I was content. Just a momma and her baby. Savoring in the moment of sweet innocence. Oh how I love that little girl.
Wednesday, September 15, 2010
Saturday Night Sillies
Sunday, September 12, 2010
So Many Utah Connections
My mom read a great post the other day from another one of our blogging friends, Heather. It told her a lot about being Mormon. She said it is good to learn about other faiths.
Saturday, September 11, 2010
Sharp Blades and Blood
Wednesday, September 8, 2010
Speechless with TEARS...the HAPPY Kind
Sunday, September 5, 2010
At Last, A Weekend to Relax
It had been quite a summer. Multiple trips to the hospital to adjust oxygen settings, to resize the trach cannula, and to inflate and dry out tiny damaged lungs. From that early morning in May when Sarah's permanent trach had been placed, she continued to baffle the doctors. Her outward appearance often looked good, yet blood draws, monitoring machines and nurse vitals suggested otherwise. It was at times discouraging and mentally draining to continue to advocate on her behalf.
We learned quickly that ambulance rides to the nearest emergency room were often met with over zealous residents who wished to perform procedures that were most certain to jeopardize the progress that had been made and maybe even her life itself. Articulating our position was at times not easy. So we started transporting her in the car when emergency struck. At least we knew if we could get to the Cleveland Clinic there would be doctors who knew of her complicated medical history.
I had used every last minute of my earned vacation time on these hospital junkets. So as September arrived, I was so looking forward to the long Labor Day weekend.
We all woke up a bit later than usual. Sarah was doing much better and that felt good. After several months, we were finally getting into a groove. John was staying home with the kids, while I went off to work each morning. It was a new role for both of us and we needed time to figure out how it was to work. There had been a few tense nights for sure. We were no doubt dealing with a difficult set of circumstances and plagued by a few people who were not particularly supportive of the situation. Yet, we were managing.
We determined night time air was better for Sarah's respiratory system, so that is when we would take her for walks and bike rides (please know I too am cringing at the lack of a bike helmet-it was 1990-before helmet safety and law enactment). She loved riding on the back of John's bike.
TJ liked to tag along too. He most always just went with the flow of life. Never a complaint, never a tantrum. (well there was that one at Sea World:) It's funny how when looking back, you remember strange little things. Like the creaking noise of those colorful things on the spokes of his bike. One of the many fads of his lifetime. A must have purchase at the moment. Today, few remember them without a picture to remind their memory. A funny memory I am grateful for. Tough years, yet I would not change much about them.Thursday, September 2, 2010
Daddy and His Girl
Sarah's first Daryl Drive block party...











