My Name is Sarah

MY NAME IS SARAH. I am a quilt designer and the sewcial director of Sarah's Sewcial Lounge. I also have a business called Down Right Charming. I sell my quilts mostly on etsy and I make pillowcases to donate to patients in the hospital in memory of my friend Kristen Kirton. I am a young adult living with Down syndrome. I hope you enjoy reading about my life journey.

Wednesday, April 14, 2010

Letter Jumbo spells Help...

Joyce here ranting(sorry)...Once upon a time when we were basically living in M-35 at the World Renowned Cleveland Clinic, I orchestrated a major coup...I secretly arranged for Sarah's Cardio-Thoracic surgeon, her Cardiologist, her ENT and her Pulmonologist to all arrive in her room at the same time and talk to one another, instead of using me as their communication board. Not a small feat as some of you have experienced. It was brilliant. Nurses still talk about it to this day.

So why...is it so impossible to get the technicians from...


and

to communicate with one another so Sarah can have her high speed internet connection, my boys can have their U-verse and I might be able to call 911 should I need an ambulance? or worse yet when a burglar is in my house trying to steal my sewing machines:) All I need is for the security system to be able to seize the line in the event of an emergency. Surely, we cannot be the only customers with these two blue empires trying to do this? Does anyone out there have this combination of carriers?
UPDATE: 8:00 am Monday morning techs from both companies will be arriving to work in tandem to hopefully get this functioning properly...I must note that both companies have been trying to help resolve this, especially when I told them about Sarah and her frequent airway collapsing issues and the number of rides we have already experienced in the back of ambulances. I would also like to apologize to our neighbors who experienced frequent intervals of screeching sirens coming from the roof rafters yesterday afternoon. I'm sure that must have been annoying.

4 comments:

Kim Rees said...

Oh Joyce! I feel for you. Friends of ours had U-verse and it was nothing but trouble. They had horrible phone service and kept losing calls and their internet was the pits. Good luck with that one!

BigBearswife said...

I dont know anything about the U-verse, but I work for ADT and you can normally get a DSL filter for your alarm so that it will work. Hope that helps :)

Adelaide Dupont said...

Hope it does get functioning soon.

Do these people use Skype?

Jennie said...

Joyce - I think you might have invented the "care conference," which we used on occasion when Micah was inpatient. A parent can call a care conference at any time, and the related parties are required to attend. The social worker orchestrates them. VERY helpful when dealing with multiple specialists.