My Name is Sarah

MY NAME IS SARAH. I am a quilt designer and the sewcial director of Sarah's Sewcial Lounge. I also have a business called Down Right Charming. I sell my quilts mostly on etsy and I make pillowcases to donate to patients in the hospital in memory of my friend Kristen Kirton. I am a young adult living with Down syndrome. I hope you enjoy reading about my life journey.

Friday, November 28, 2008


An ultrasound during my pregnancy suggested that I was carrying a girl, so I was thrilled when Stacy was born in July, one month before my due date. Her family lives directly across the street from us, so I fantasized about our little girls being best friends. The night after I delivered, I had a dream about Stacy and Sarah having tea parties, playing dress up, doing each others hair and having pillow fights at sleep overs.
Shortly after waking up the next morning, the doctor told me he thought Sarah was Down syndrome. My dreams of the little girls being best friends were shattered. For days, I avoided Stacy's entire family. If I saw them outside playing, I would be sure to stay inside. I didn't want to have to tell them about our diagnosis. Eventually, I pulled together enough strength to let them in on our little secret. Is it By Chance or By Design that Stacy and Sarah quickly became playmates.

When Sarah was just a toddler, I was given a copy of the book Circles of Friends by Robert and Martha Perske. Chapter 3 begins, "Friendships are such an everyday thing, we just take them for granted. They are like electricity, telephone, clothing and three meals a day - we anguish only when we are deprived of them. And yet we have just begun to sense the pain experienced by people with disabilities when they are deprived of mutually satisfying friendships with ordinary people." At the time, I remember reading the book, more interested in the beautiful illustrations of darling children with Ds. The words did not seem to have a particular connection with me. Looking back, I simply didn't get it.

(click on the picture to enlarge)

In 2007, the Brush High School yearbook editors decided to write stories about friends. Without giving me the details Stacy told me she agreed to share her story of her friendship with Sarah. The day the book came out, I started to get calls from teachers who worked at the high school. They could barely tell me about it without crying. Then parents of other students started calling. They too were having a hard time describing it. Finally, I drove up to get Sarah's copy. Why I had to read it before getting to the car is beyond me. I was sobbing. Hysterically. The security guards stopped me to ask if I was alright. The assistant principal asked if he could be of help. I made it to the car, calmed myself down, and then called Stacy on my cell phone. I tried to tell her how much I liked the article, how much I admired her inner strength to share her story, and how much I loved her.
Robert Perske goes on to write in the book, "we need to view a good friendship the way we look at a sunrise, seeing it in all its radiance."
That's why I was so emotional, and I suspect the other adults too. I finally got it. Sarah has been genuinely blessed to have such a beautiful friendship with Stacy. True friendships are to be envied. They generate their own energy, their own passion, their own life line.

When the literature for Sarah's senior portraits arrived, it advertised a special friendship package. It didn't take a second thought to know that there would be two beautiful young women at that photo shoot.
My wish for every child with Down syndrome is to be blessed with a friend like Stacy. There is nothing richer in this world.


Mommy to those Special Ks said...

Ahhh this post made me cry!!! I hope Kennedy has a best friend just like her!

Anonymous said...

Just before 8 am is not the best time to be crying! A beautiful post!

Mary said...

Wow, what a special friendship. They are so easy to take for granted, yet so hard to come by.

narretto said...

Thanks Im not just crying, I am bawling my eyes out LOL...Doesnt everyone want a real true friendship for all of their children..Wow but for your child with "special needs" to have such a wonderful peer in her live. What a beautiful friendship.

JRS said...

That is a truly beautiful story. Thanks for sharing it.

Lacia said...

What a special gift Stacy is. How wonderful to have such a special friend....BOTH of you.

heather said...

What a great post! It definitely made me get a little teary-eyed. HOw lucky each girl is to have each other! I hope that Morgan is able to find a best friend like that too! Thanks for sharing!

datri said...

What a beautiful story! No wonder everybody is crying! (me too)

Michelle said...

What a beautiful story - of a beautiful friendship. I was in tears, reading this. Such amazing girls!

Michelle said...

that is a beautiful story of friendship! I love the scrapbook layout showing the pictures of Sarah and Stacey throughout the years.