I can hardly believe it has been 31 days. I will admit that blogging for 31 straight days has created some tension in the household for Sarah and me. The guys are demanding dinner, but we are blogging. Matt wants us to come to his soccer games, but we are blogging. Everyone is out of clean underwear, but we are blogging. The milk jug is empty, but we are blogging. Dad wants to do his work on his computer, but we are blogging. The school bus is beeping it's horn at 6:30 in the morning(bet the neighbors loved that), but we are blogging. I'm late for work, the excuse: I was up all night blogging... you get the picture.
In all seriousness, what a super idea to post for 31 days in support of Down syndrome awareness month. Thank you Tricia. Sarah and I have just recently found this wonderful world of blogging. Let me tell you how this all came about. Sarah and I met Melissa Riggio years back when we first attended a national Ds convention and have been following her musical adventures ever since. I was at work when I received the first email alert of Melissa's untimely passing. I immediately did a google search for additional information and that is when I stumbled upon Tara Marie's blog about her beautiful Emma Sage.
I continued to read through other blogs Tara has listed and I repeatedly saw a square box with "Praying for Parker." Finally I clicked that box and up came these adorable pictures of Parker. Upon closer examination I discoverd he is Down syndrome and has a trach. My eyes immediately welled with tears. Not because I was sad for him, but because after nineteen years I finally found another child just like my Sarah. Can you believe in all these years I have never met another child with Ds who has a trach. All these years I have felt so alone with that part of our journey. Soon I found a link to sweet Maddy in Cinninati who also has a trach. Now I'm hooked. I find myself running to the computer the minute I get home from work to continue exploring. Sarah is perched right next to me as we look at photos and I read her the stories.
We started following so many cute and adorable kids. When Matt came home from school he would ask, "How's Parker; what did Ella Grace do today; did Megan have her sleep study yet?" We were all hooked. It did not take long for us to figure out there are not too many sites about teenagers. That's when the idea of Sarah's blog started to take shape. I thought about the different stories we could tell of things I fretted about when she was a toddler. All the fun high school experiences that I wondered if she would ever have a chance to do and has now done . And we could show all the skills she has aquired. That's when it hit me that this needs to be Sarah's blog. Sarah blogging her own story.
Of course when Sarah was born, the word blog would not have passed spell-check. What a minute, when Sarah was born I was typing on an IBM Selectric typewriter (which is why my boys think I roamed earth with dinosaurs), so we didn't even have spell check. I admit it has taken quite a few hours to get set-up and go live. And we are continuing to learn along the way.
That brings me to another issue. During the month, we have been tagged and zapped and sent bloggy awards. We are touched and honored but we have not responded yet to any of them. Please don't think we are being rude. I have yet to figure out how to get those imbedded into our blog. I finally broke down and bought "Blogging for Dummies" last weekend so hopefully I can figure it out soon.
In closing, let me say we have been humbled at the response we have been receiving. Words truly cannot express how overjoyed we have felt in knowing that Sarah's story has given a small glimmer of sunshine to families in showing that the journey only gets better with each passing day. I am continually in awe of so many of you. In truth, I started out thinking we were going to be helping younger families, yet what I have quickly realized is we are the ones that are receiving. It seems each night I stumble onto a new site that gives Sarah a sweet new face to remember and helps me uncover truths and pains that I have buried over the years. I am so grateful to Lisa, with her handsome little Finn, for telling her story in such a poignant and tender manner early in their journey. And I would be neglectful in not acknowledging that our connection to all of you would not have occured if it were not for Melissa. Was that By Chance or By Design? To the Riggio Family, you continue to be in our prayers. We will never forget your amazing daughter and what your entire family has meant to the Ds community.