Friday, February 17, 2012

It's a Catch Twenty Two...

By Joyce.  I have so many blog posts swirling around in my mind. I so want to document all the little things that are presenting lately. A real life glimpse into parenting a twenty two year old with Down syndrome. I just never seem to have time to sit down and write anymore.  But here goes...

We had a dilemma this evening.  Matt had a premier team soccer practice in a community about 45 minutes from where we live and he does not drive, so John needs to take him.  The store is open until 8:00 on Thursday evenings so I need to be there.  Sarah has been fighting an asthma episode for more than a week.  She did not want to leave the house but we never leave her alone at night.  We do not have anyone trained to come watch her (that's a whole different post and one I won't get into tonight).  So what to do?  What to do?  My husband and I discuss the situation.  We discuss it some more.  I mentally list off all the possibilities of things that could go wrong.  Sarah really does not want to leave.  She pleads to stay home.  So we let her.

I called her at 6:30 to make sure she was alright.  "Mom, I'm fine," she says.  I remind her I have to run to the post office as soon as the store closes and then I will come straight home.  Then the store gets really busy, and I forget about worrying that she is home alone.  The last customer leaves at 8:05. I quickly gather my coat and bag and head out the door. Just as I am about to get into the car, my cell phone goes off.  I glance at the readout and see it is Sarah.  My heart jumps a beat. 

"Mom, Don't forget to go to McDonald's and get me chocolate chip cookies."  I sigh deeply, an expression of my relief. "OK sweetie, I won't forget." I smile to myself as I realize that she knew exactly what time to call me.  She likely even understands that I have a tendency to forget things lately.  I think about how far her speech has come lately.  How pleased she is with herself when she stays home alone.

But then as I drive off, I start to question.  What would happen if that call was the neighbor letting me know the house was on fire?  Or someone broke in through the side door.  Or a deer ran through the sliding glass door.  Would I be held accountable?  Would I be judged on her being left alone.  Is leaving a young adult with diminished judgement alone wrong?  It's a catch twenty two, I've decided.


When I walked in the door, Sarah was waiting for me. She already had her glass of apple juice poured.  She had a napkin waiting, and her chair turned around to watch television while she enjoyed her snack.  She is oblivious to my insecurities about her staying home alone when it is dark outside.


When I questioned her on why she was having apple juice and not milk, she confidently reminded me  that she has had an asthma episode and milk is not good for the airway.  I'll leave out some of the not so pleasant details, and just say she has been self managing her episode better than ever.


And then she went about enjoying her chocolate chip cookies.  So I went about putting in a load of laundry, folding the towels that were in the dryer and making me some dinner.  The guys got home about an hour later.  No worries. Life does go on. Until the next little dilemma, anyway.    

Tuesday, February 14, 2012

Valentine's 1992 Style

Twenty Years Ago Today...





Monday, February 13, 2012

Painting Hearts

Twenty Years ago Today...


Sunday, February 12, 2012

Sunday Sweetness

Twenty Years ago Today...

Saturday, February 11, 2012

A Counting Update

By Joyce:  I want to give a little update about our previous post.  I have been receiving many requests to share the video with teachers.  Yes, please feel free if you think it will help your child in anyway.  If you would like me to send a link for just the video directly to your email, send us an email at: sarahely8989 at (i'm spelling this out so we don't get spammed, but use the @ sign) yahoo.com and I will send it over.

If you follow us on facebook you have already heard this story, but I'd like to share it here as well.  I stayed in the office late on Thursday to finish the uploading of the video so I could do the post.  When I got home Sarah was waiting for me at the door.  She have me a hug and said, "Mom I saw the video.  Thank you for finding the money machine."  I almost melted right there in a puddle of mush on the floor.  I wonder how many times we have made her do things over and over and over again that were not pleasant, when a simpler solution was available.  And one that gets the job done.  I'm so happy she was able to articulate her feelings to me.

Now I have a question.  There is a big debate going on around me.  Should the title of the post we are talking about been:

1)  Do Counting Coins Matter     or

2)  Does Counting Coins Matter

It seems people here in Ohio are split 50/50.  So I thought I would ask a broader sampling. I'm really not sure.  Maybe I need to go back to grammar class:)

Before I go, I just want to share a photo with you.  Seems my little ole car wants in on this counting discussion too.  I ran to the bank today and on the way back to the store I looked down and...


...check out that odometer. LOL!!! Not to mention the frigid temperature in Cleveland today.  Sarah is really struggling to breath.  We don't dare take her out in this weather.  I just wish we had an oxygen tank in the closet.  She could use some I'm afraid.   

Thursday, February 9, 2012

Does Counting Coins Matter?

by Joyce...It has been a while since we have done a keeping it real post. The following video did not start out with this purpose.  I started taping simply to post when we talked about counting the money Sarah was collecting in the store for Katie, an adorable girl who is being adopted by the Simpson family.  I'll let you watch it now...


I used to have Sarah count coins in the store on a regular basis. Then we started getting too busy to have that be an every day activity.  As the camera started rolling on this day, I was stunned that Sarah was having trouble counting to ten.  She has never mastered the value of money.  Yet counting to ten used to be a simple task for her.  I will admit I was startled by this discovery.  My mind of course started going into overdrive.  Was this a sign of a larger problem?  Possibly another reminder that early Alzheimer's is something I need to be concerned with.  For the next few days, I raised that antenna higher than it had been.  I found many different opportunities for her to count things for me. The pattern was consistent.  Sometimes she was able to count to ten, sometimes not. 

Then very late one night, I ran into the grocery store.  Off to the side of the entryway stood three college age guys and an older gentleman.  At first I wondered if something had happened. I peered onto the floor to see if someone had fallen.  Seeing no one, yet being awfully nosey, I pulled my cart a tad closer in their direction.  It appeared they were all waiting for the big green cash machine.  So I went about my business of shopping.  As I was leaving the store, I noticed a woman at the same machine.  It was then I had one of those ahhhaa moments.  Why does Sarah need to count the coins?  She can bring the jars over here, dump them into the cash machine like all the folks I had observed.

Is this a good solution?  Am I giving up too soon?   Does counting coins even matter?  I'm not sure.  I do know we found the perfect solution for the task at hand.  In all, Sarah dumped nearly $500 into that machine over the past few weeks.  All to help bring a sweet blond haired girl home who's been living in an orphanage. And that does matter.

Wednesday, February 8, 2012

100 Years of Disney ~ Sarah's Video

Here it is.  The video you have been waiting for.  If you listen really closely you might hear my voice. I was full of animation watching this show. 


Tonight not so much. I am in bed with an asthma attack.  Darn lungs. I hate them.  I love Disney though.  Enjoy.

Monday, February 6, 2012

100 Years

Guess where I went this weekend?


I've been up this big escalator before. I love it.  My mom doesn't.  She kinda freaks out so I have to take her hand to help her get on.


The show is just about to begin.  We have new seats.  The first ones had some moms with really stinky perfume sitting in front of us. It made me start wheezing and gagging.  The usher wanted to call the paramedics over.  My mom told them no.  She said that I would rather die than miss what is about to happen...One Hundred Years of Disney...


OMG!! In all the Disney on Ice shows I have been too, I have never seen Donald Duck driving a zamboni.  I was laughing until I screamed for Goofy to get up.


Then I screamed again for Goofy to get out of the way.  That's when my mom decided she better turn the video on.  I would show you but she is too tired to upload it right now.

Do you want to know why?  Because it took us nearly four hours to get home from Columbus today.  We got caught in a huge traffic jam. I-270 and 71 was full of cars with New Jersey and New York license plates. There were lots of news station trucks. There was even a Brooklyn fire truck.  We were so confused.  Then my mom called my dad and he reminded her the Superbowl was in Indianapolis and this would be the way for them to get home.  The New York Giants fans that is.  Hey, I heard they won.  Yea for them!!  I wonder if the Cleveland Browns will ever get into a super bowl? 

Gotta go to bed now.  I will show you my video tomorrow.  Here's a hint. Lots of Genies and Toy Soldiers too.  See ya.

Wednesday, February 1, 2012

Coins 2 Cash 4 Katie

Do you remember this post?  We have been collecting coins in our store for Katie.  My mom got word that her forever family is about to travel.  That means all their paper work is done and they are going to be meeting Katie really soon.  So we need to count the rest of the money that is in our jar. 


Today is Wednesday. Penney works with us.  She said she would watch the quilt shop while my mom and I ran to the grocery store.


Yikes!! This jar is very heavy.  I hope I don't drop it.  Do you wonder why I am taking this jar to the grocery store? 


Taadaa!!  The big green cash machine:)


This thing works like magic.  It counts all the coins for me. I'm so happy my mom came up with this idea.  I was not having so much fun counting all of our coins.  So how much money do you think we have for Katie?


$41.15.  How does that machine count so fast? That's what I want to know.  So I hope this helps bring Katie home.  Oh I almost forgot...
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drum roll please...
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Hahaha sneaky I am.  Yep that's right. Today's jar was just one of many we have been emptying out.  Our grand total to bring Katie home is $541.15.  Do we have the best customers in the whole wide world or what!!!!!  Thanks to all the generous people in our house of fabric who gave their extra change for Katie.  You are the best:)!!!!:):):):)!!!!
  

Tuesday, January 31, 2012

Boo!!!

Last night my mom told me Moda Mark was coming to the store in the morning.  That means I get to pick out fabric to buy.  I asked her what he was bringing.  She told me Halloween and Christmas. 

I knew just what to wear this morning...

What do you think?  Lol!! The fabric is even going to say Boo:)


Next it was time to pick out the Christmas fabric.  I like Mark. He gives me these cute little sample packs.  I put them in my pocket and took them upstairs to show everyone in the office.


Guess which one is my favorite?  It is called Joy and it has been designed by my very favorite Kate Spain.  Hey I have not talked to Kate for a while. I need to call her I think.  O.K. Happy Halloween.  Merry Christmas:)  Laughing here in the shop.  I think we are all mixed up on holidays.

Monday, January 30, 2012

Snowgirl

Twenty years ago today...

Saturday, January 28, 2012

Down Right Perfect

There's a new book I want to show you.  The cover is so adorable!!


It is called Down Right Perfect.  It is by Kristina Bewley.  She is a photographer.


Inside are lots of really cute pictures. I was having so much fun looking at all of them.


There is a story to go with the pictures too.  Here is the story about Giselle. Oh my gosh she is so precious.  Her mom created this book with the help of others.  There are stories about Wesley, Ella, Caleb, Josiah, Sydney, Kara, Ben, Randy, Lillian, Ian, Brendon, Grace, Zachary, Jackson, Penelope, Reed,  and Shonn too.  They are all so cute and they are all wearing really fun clothes.


My mom said I could decide where to put the book in our store.  I picked this display.  I think it fits perfectly right here.  Hey that's a match.  Down Right Perfect.  Come get one now.  Or you can order it from Amazon right here with this link

The Gift Card Goes To...

Love this...


Thank you Debbie!!

Thursday, January 26, 2012

A Call from Texas

This is me waiting...


I'm about to talk to Noah's Dad...



My mom forgot to turn the speaker on at first but I was listening.  Rick is going to take Noah to see Disney on Ice when he gets bigger.  I think he will like it.

Saturday, January 21, 2012

Forgiveness

Monday, January 16, 2012

Dare to Dream

Guess where we went today?


It was my mom's annual birthday treat.


This year Matt and Jessica went with us.


Maybe this will give you a clue?


Now you have to know.  Disney on Ice.


This year's show was Dare to Dream. It featured Princess and the Frog...


Can you guess this one?


Cinderella!!! And Tangled.


It was an awesome show.  We had a very good time.

Tuesday, January 10, 2012

Meet Noah and his Dad

YOU must watch this. Noah is soooooooooooo cute!!!

Friday, January 6, 2012

Look Out Below

We had a sale last week at the quilt shop and we sold a lot of fabric. 


Look at all these empty bolts.  We had a contest over on the store blog to see if people could guess how many were stacked up.


Yesterday we numbered all of them and guess what, we had a winner.  Just as we were about to leave last night my mom asked me how high I could reach.  So I showed her.  And then I heard her scream, "Sarah don't touch it." 


Too late.  They all came tumbling down. Right. On. My. Head.  Ouch!! But it didn't really hurt. We laughed. Then we really laughed.  Until we realized my mom was trapped in the stairwell down below.  And we were the only people left in the building. I had to start digging her out.  Then she fell onto the empty bolts when she was trying to climb out. That's when we started laughing so hard I could hardly catch my breath.


You just never know what my mom and me are going to do next... 

Thursday, January 5, 2012

Bye Bye Sippy Cup

Twenty years ago today...




Tuesday, January 3, 2012

Happy Birthday TJ

Today is my big brother's birthday.


Julie had a party for him with a chocolate cake and candles.


I got to go.  It was fun.


Julie is a good cook.  Happy birthday TJ!!!